Understanding Hashimotos Encephalopathy

This is the title of the book I have been working on which is on sale as on Dec 31, 2013 on Amazon and next week it should be available on Kindle. I am so proud of all the work that we have all done on this book. There is so much information for anyone who has been dx with HE, or family members of patients with HE. There is wonderful information for the medical world as we have over 40 patient stories of how they were dx, misdiagnosed, treatments options and symptoms. Their stories as individual as the rare disease its self. As of a few weeks ago we have sold over 200 copies. So exciting. All money goes back into our non profit org that will reinvest the money into sending copies to teaching hospitals, 3 rd world countries and so on. I feel we really can make a difference. Being sick with chronic illnesses can make one feel pretty useless. Not only can you not work and add to the family income but you are not well enough to even keep your own house clean, or have the strength in your body to take a shower on some days. So to do something positive with the gifts God gave us is very powerful to me. It makes me feel like I can still contribute to society, make a difference. None of us are scholars writing this book. But we did it through all of our sicknesses, and set backs. So winter has been raw, heavy snow, and heavy legs for me. Hard walking, using a dang cane to steady myself. It does help with the body movements but now with my head movements. It hurts to use it. It hurts my pride. I just came back from a very close family friends funeral, and my legs have been very back along with my back. But I would not use that dam cane at the funeral, no instead, I stood up in the front talking to the family tipping over so that one family member had to catch me and straighten me up. So lets see what would have been more embarrassing? Me tipping over for no reason, or using a cane, gee lets see. Well that was a lesson learned tonight. I have to get back swimming, next week, two much time off. I feel it too. I need to keep; what I still have moving. Well I had to give into steroids over Christmas, I had to go on a steroid pack, to help me through. My brain, my word finding, was awful. I was dragging my right leg and foot. I had so much confusion and no concentration in anything and everything I did. Even recipes for which I never had problems in, are now a problem for me. I can read them over and over, yet take my eyes off the recipe for one min. and I forget something, this is a downer for me. I have always prided myself on my cooking and baking, not no more. My lap tops been down for over a month, been trying to use my kindle for which thank God I had it for e mail and faced book, but the auto corrects were driving me nuts along with who ever was trying to read my messages. lol. Well time to head to bed will be back soon. Good night