Tuesday, October 8, 2013

Small Fiber Biopsies Waiting for Results

So the waiting begins. I had a small fiber neuropathy done in two places in my left leg yesterday. I have perhieral neuropathy, and my doctor has said I have small fiber neuropathy also, but the rheumy thinks it needs to be confirmed by the biopsies to see if that is what is causing my walking and tipping and I think he is right. At least I will know for sure if it is from that or not. If not then I have to look somewhere else. Although the large fiber neuropathy can cause the walking problems also, the rheumy said with the small fiber it will come and go, such as the pain and stiffness in my legs. So we will see. The last few days it has not been to bad, but then again I have not really gone anywhere, or done too much. So how can one tell. Tomorrow it maybe back in full force again, and I will be thinking I need to buy a cane. I do know that I will have to get one soon. As the balance issues is bad. My word finding is bad right now too, calling things the wrong names, which sometimes can be funny but it gets embarrassing if anyone else is around. This is caused from my friend HE. Nothing is boring here in autoimmune land. The doctors are talking IVIG treatment if the tests show sfn. I know there has been some good results, so that makes me anxious, but the side affects scare me. Severe headaches, nausea not to mention how much each IV infusion of the IVIG is and if the insurance will cover it. Lots of ifs. But I want to walk, I want to be able to take a mile or two walk, go shopping, have fun with my kids and grand baby. So we will see what the next two weeks may bring.