Friday, September 6, 2013

I can not walk, tipping like a drunk no answers

Such a title, right? Well, my walking has been so bad again, pain, weakness, stiffness. I had an appointment with my neuro who I really respect and like as a person. She agreed with my PT that all my trouble is not coming from my back issues. There is a lot more to it. Then lately, my legs get stiff, like I can not bend them, this she thinks could be the scleroderma. They itch bad too. She said to ask my rheumy end of the month when I go about it. I have had other things that have come up such as the loss of pigmentation on my hands that I would attribute to scleroderma also. So we will see. But yesterday I was so bad when I went to the appointment that I could barely walk, when she walked with me to leave, I stopped to answer a question and tipped over into the left wall. (Like I do) So for once I showed the symptoms as they are for a doctor usually I get into the doctors office and everything is better, just like a kid. lol Well she wants me to record my blood pressure three times a week, for two weeks, once laying down, then once walking for three mins. and fax it to her. She thinks my blood pressure could be dropping. (Neuropathy causes this also) but I really do not believe this is it. If anything my blood pressure spikes, not drops. But we will see what happens. She feels this could be the arm problem also. Again I do not believe so. But when the two weeks are up, I want more tests I want to know what is going on, if I know I can handle it. She wanted to give me stronger pain meds and I said no, I am alright with that. I can handle it right now. So I walked out without bringing up the plasma exchange treatment I was going to talk to her about, but I will mention that also when I fax the info to her. IT is so weird that today now I feel better, not great, but better than yesterday, one just never knows. As normal I am tired but that is an everyday thing for me. Well enough for now, till we meet again.